Decision-making in paediatric palliative care interpreting
DOI:
https://doi.org/10.52034/lanstts.v20i.594Keywords:
values, palliative care, decision-making, ethicsAbstract
The interpreting profession has long used metaphors or rule statements to describe and teach the ways in which practitioners make decisions (Dean & Pollard, 2011, 2018). Interpreting students are also often taught that the context of an encounter will dictate their decision-making by way of statements such as “it depends”. Such pedagogical statements can make talk between a practitioner and a medical professional about the responsibilities of an interpreter during medical encounters difficult. This study is based on the work of Dean and Pollard (2011, 2018) on value-based decision-making and is guided by the four principles of biomedical ethics (respect for autonomy, non-maleficence, beneficence and justice). It has sought to provide evidence of the existence, applicability and usability of these frameworks through a single case study of a real-life appointment in which a parent of a palliative care outpatient and a medical professional communicated during a consultation, aided by a medical interpreter.
References
Al-Yateem, N. (2012). The effect of interview recording on quality of data obtained: A methodological reflection. Nurse Researcher, 19(4), 31–35. https://doi.org/10.7748/nr2012.07.19.4.31.c9222
Araujo-Lane, Z. (2009). The art of medical interpretation (3rd ed.). Cross Cultural Communications Systems.
Bachiochi, P. D., & Weiner, S. P. (2002). Qualitative data collection and analysis. In S. G. Rogelberg (Ed.), Handbook of research methods in industrial and organizational psychology (pp. 161–183). Blackwell. https://doi.org/10.1002/9780470756669.ch8
Baker, M., & Maier, C. (2011). Ethics in interpreter & translator training. The Interpreter and Translator Trainer, 5(1), 1–14. https://doi.org/10.1080/13556509.2011.10798809
Beauchamp, T. L., & Childress, J. F. (2013). Principles of biomedical ethics (7th ed.). Oxford University Press.
Bolden, G. B. (2000). Toward understanding practices of medical interpreting: Interpreters' involvement in history taking. Discourse Studies, 2(4), 387–419. https://doi.org/10.1177/1461445600002004001
Brisset, C., Leanza, Y., & Laforest, K. (2013). Working with interpreters in health care: A systematic review and meta-ethnography of qualitative studies. Patient Education and Counseling, 91(2), 131–140. https://doi.org/10.1016/j.pec.2012.11.008
Butterfield, L. D., Borgen, W. A., Amundson, N. E., & Maglio, A.-S. T. (2005). Fifty years of the critical incident technique: 1954–2004 and beyond. Qualitative Research, 5(4), 475–497. https://doi.org/10.1177/1468794105056924
Committee on bioethics. (2016). Informed consent in decision-making in pediatric practice. Pediatrics, 138(2). https://doi.org/10.1542/peds.2016-1484
Creswell, J. W. (2014). Research design: Qualitative, quantitative, and mixed methods approaches (4th ed.). Sage.
Dean, R. K. (2014). Condemned to repetition?: An analysis of problem-setting and problem-solving in sign language interpreting ethics. Translation & Interpreting, 6(1), 60–75. https://doi.org/10.12807/ti.106201.2014.a04
Dean, R. K. (2021). Healthcare interpreting ethics: A critical review. In ?. Susam-Saraeva & E. Spišiaková (Eds.), The Routledge handbook of translation and health (pp. 198–215). Routledge. https://doi.org/10.4324/9781003167983-16
Dean, R. K., & Pollard, R. Q. (2011). Context-based ethical reasoning in interpreting: A demand control schema perspective. Interpreter and Translator Trainer, 5(1), 155–182. https://doi.org/10.1080/13556509.2011.10798816
Dean, R. K., & Pollard, R. Q. (2013). The demand control schema: Interpreting as a practice profession. CreateSpace Independent.
Dean, R. K., & Pollard, R. Q. (2018). Promoting the use of normative ethics in the practice profession of community interpreting. In L. Roberson & S. Shaw (Eds.), Signed language interpreting in the 21st century: An overview of the profession (pp. 37–64). Gallaudet University Press.
Diefenbach, T. (2008). Are case studies more than sophisticated storytelling?: Methodological problems of qualitative empirical research mainly based on semi-structured interviews. Quality & Quantity, 43(6), 875–894. https://doi.org/10.1007/s11135-008-9164-0
Dysart-Gale, D. (2005). Communication models, professionalization, and the work of medical interpreters. Health Communication, 17(1), 91–103. https://doi.org/10.1207/s15327027hc1701_6
Gonzalez, S., Lummer, L., Plue, C., & Ordaz, M. (2018). Community healthcare interpreting. In T. Holcomb & D. Smith (Eds.), Deaf eyes on interpreting (pp. 209–222). Gallaudet University Press.
Hale, S., & Napier, J. (2013). Research methods in interpreting: A practical resource. Bloomsbury.
Juckett, G., & Unger, K. (2014). Appropriate use of medical interpreters. American Family Physician, 90(7), 476–480.
Kaufert, J. M., & Lavallee, M. (1999). End-of-life decision making among aboriginal Canadians: Interpretation, mediation, and discord in the communication of “bad news.” Journal of Palliative Care, 15(1), 31–38. https://doi.org/10.1177/082585979901500105
Kirby, E., Broom, A., Good, P., Bowden, V., & Lwin, Z. (2016). Experiences of interpreters in supporting the transition from oncology to palliative care: A qualitative study. Asia-Pacific Journal of Clinical Oncology, 13(5), e497–e505. https://doi.org/10.1111/ajco.12563
Napier, J. (2004). Interpreting omissions: A new perspective. Interpreting, 6(2), 117–142. https://doi.org/10.1075/intp.6.2.02nap
Norris, W. M., Wenrich, M. D., Nielsen, E. L., Treece, P. D., Jackson, J. C., & Curtis, J. R. (2005). Communication about end-of-life care between language-discordant patients and clinicians: Insights from medical interpreters. Journal of Palliative Medicine, 8(5), 1016–1024. https://doi.org/10.1089/jpm.2005.8.1016
Santoro, J. D., & Bennett, M. (2018). Ethics of end of life decisions in pediatrics: A narrative review of the roles of caregivers, shared decision-making, and patient centered values. Behavioral Sciences, 8(5), Article 42. https://doi.org/10.3390/bs8050042
Section on hospice and palliative medicine and committee on hospital care. (2013). Pediatric palliative care and hospice care commitments, guidelines, and recommendations. Pediatrics, 132(5), 966–972. https://doi.org/10.1542/peds.2013-2731
Schenker, Y., Fernandez, A., Kerr, K., O’Riordan, D., & Pantilat, S. Z. (2012). Interpretation for discussions about end-of-life issues: Results from a national survey of health care interpreters. Journal of Palliative Medicine, 15(9), 1019–1026. https://doi.org/10.1089/jpm.2012.0032
Sharma, R., & Dy, S. (2011). Cross-cultural communication and use of the family meeting in palliative care. American Journal of Hospice and Palliative Medicine, 28(6), 437–444. https://doi.org/10.1177/1049909110394158
Thomas, G. (2011). A typology for the case study in social science following a review of definition, discourse, and structure. Qualitative Inquiry, 17(6), 511–521. https://doi.org/10.1177/1077800411409884
Walker, J., & Shaw, S. (2011). Interpreter preparedness for specialized settings. Journal of Interpreta-tion, 21(1), Article 8.
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